I’m the father of a marvelous Matteo (a Williams Sindrome baby) and also partner of an Italian Williams Syndrome nonprofit association (AFSW Onlus – Williams Syndrome Families Association – www.afsw.it).
I’ve seen only now your beautiful work about our boys. We all think that it really presents how our babies are a sunbeam to the world around them (and this makes easier to overcome all difficulties).
Thank you for your sight on our lives.
I have a 10 year old daughter with Williams Syndrome and when I saw the clip of your movie “Embraceable”, I was deeply touched by it. I feel truly grateful for your work and its lessons in simplicity, gratitude, and clarity. I can’t wait to see the full movie. I’m sure your work will inspire and honor the WS community and will bring awareness to those beautiful people. Please accept my heartfelt gratitude for your superior work.
I would like to share the attached photograph with you.
I love this photo because it portrays the very essence of who my daughter (Christabal) is. Its simplicity reflects the passion and love that a child with Williams Syndrome has toward Nature and the environment around them. We took this photo in a park, and we asked her to pose while holding the flowers. Yet, she chose to not simply hold them but kiss them - in this simple act of love she personifies the character of a person with Williams Syndrome. They recognise the beauty in the World around us, and hold only love within for all.
The World would be a better place, if we could all hold in our heart, what they have in theirs.
The Viering Family, Germany
Our son is called Benno and he's 18 months old. The 1st year was difficult for all of us, as we didn't know about his syndrome until he was 10 months old. The nights were a disaster, because he just slept in his mother's arms... Since we've decided to let him sleep together with his "big" sister Emma (age 4) in one room, he is happy and his parents are, too. Apart from a very tiny heart disease and some problems with his urinary tract, he is physically fine.
All in all, our little Benno is just EMBRACEABLE =)